Big bless
祝你先生早日战胜病魔
帮lzmm查了下现在正在进行中的clinical trials
https://classic.clinicaltrials.gov/ct2/results?cond=pecoma&term=&type=&rslt=&recrs=a&age_v=&gndr=&intr=&titles=&outc=&spons=&lead=&id=&cntry=&state=&city=&dist=&locn=&rsub=&strd_s=&strd_e=&prcd_s=&prcd_e=&sfpd_s=&sfpd_e=&rfpd_s=&rfpd_e=&lupd_s=&lupd_e=&sort=
唯一是在用药的是北京积水潭医院的一个试验 https://classic.clinicaltrials.gov/ct2/show/NCT05625919?recrs=a&cond=pecoma&draw=2&rank=1
不确定lz先生的状况还是否适合奔波 咨询一下现在的医生吧 bless!
Cath226 发表于 2023-12-06 07:44
谢谢,这个正在进行的trial
- Interventions: Drug: Sirolimus for Injection (Albumin Bound)
应该就是美国已经有的药fyarro
FYARRO ® (sirolimus protein-bound particles for injectable suspension) (albumin-bound) is a prescription medicine used to treat adults with malignant perivascular epithelioid cell tumors (PEComa) that have spread to other parts of the body (metastatic) or cannot be removed by surgery (
Bless
bless~~~
big bless
祝福
你也真是,病人都已经很痛很痛了,还怎么去旅游啊。
lucyenet 发表于 2023-12-06 08:15
我想她的意思是委婉的说转移到这些地方了,已经没必要了,就不要折腾了,好好度过剩下的日子
但是战斗还没开始呢,我们还有药可以试,我lg心态比我好,我也要坚强
到底了
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